Tag: disability rights

Social

I See You

JaysWorld

I see you

I see you talk

I don’t know what sounds you is making

but I see

.

I see you body move

I see you face make shape

I see face make lines

I see you face mouth line

down or up

.

I know you talk about me or not

I see talk good or bad

people think I not know not understand

I know

I not have hear sound

I know I see

.

people talk about I front I

it make feel mad

I there I see I know

I can be talk to I can be include

I not doll I person

I have right be talk people too

I want friendship too talk to I not about I

.

Disability

Accessibility

JaysWorld

Accessibility many many things

not just wheelchair ramp

Accessibility simplify language

little sound hush

earphones headphones

AAC device

facilitated communication

symbols

space to rock flap stim tic

book on sound

sign language

place latex free

assistive technology

light not bright

Accessibility many more things

Accessibility not just wheelchair

Disability more than just paralysis

Give more than just wheelchair ramp

All accessibility I need or world not accessible for me

Disability

NDIS

JaysWorld

NDIS say

value for money

like we are property

like a price can be put on a life

like we don’t matter

People are valuable

wether they can work or not

life has value

no matter what

we all contribute

with our life

disabled are important

disabled are valuable

just as we are

no price can be enough

for my words

no price can be enough

for peoples lives

NDIS said choice and control

for me to choose

where I live

how I live

to be included in the community

I have not seen choice of my life

I have not seen control of my life

NDIS tried to put me in a home

This is not choice

this is not control

I have the right

to live

to exist

to be me in my way

to have a life a life that I want

NDIS has only been pain for me

fear

stress

NDIS is not working for me

it needs to change

for me

for everyone

lives are valuable as they are

always

Disability

trust

JaysWorld

Content Warning – Talk of abuse

I live in a world where I’m expected to trust everyone. I have to have support workers in my home and therapists and more. I don’t get to have a home like other people. privacy not something I get the privilege to having.

all this people is strangers for I and I expected to trust with nothing for I see can be trust.

this not ok to me. I huge abuse all life. I not trust many. I not going trust people not know long times. Sometimes care do bad things and I can’t like. I trust break once I never trust again. All time people show I going be use and take advantage of. I not understand many what people do.

care talk I like I baby. I hate it. I not baby.

need help do everything not matter. I adult talk I like adult. Not matter play toy. Not matter need formula drink. Not matter all help need. I still always adult. I still person own think and feel. When talk I like I baby you saying I not equal. You saying I less. You saying you have power and control over I and take I right to choice and control I life.

you take and take and make I upset then make I meltdown then you say meltdown hurt self you can’t choice when you why meltdown. This not fair to anyone.

I communication get bad. Sometimes can’t communicate. You not see other way communicate. Only listen using word. Word not everything. Word your way not I way. You not see body and stim and different way then say not communicate. I say you not communicate. You only want you way.

you want I be trust then you do work see communicate change how talk I. Stop make I do many work make you comfortable. You be uncomfortable and communicate way understand for I. I tired push all time push push and be treat baby like not respect. Start respect I and do better.

I should be ability communicate way best I not best for you.

good night.

Disability

Six

JaysWorld

six. Six is a number I know. It’s the number you tell people I am in my head.
mentally six year old. What does that mean? How do you know what anyone is in their head?
it’s a number. You use it to say I can’t do this I can’t understand that I’ll never want sex. You think I be six forever.
I like what you think only for child. Why? Why everything only this old?
I can’t understand math or read and write but I never forget six.
I’m not six. I not been six for long time. I 41. I be 41 in my head. I live 41. even when I can’t read and write even when I can’t understand number even when I play toy you say childish I’m 41. you not know my head. You not know what I think.
you say mentally six then take my right to choose. I choose where live I choose who to love I choose what my life and you say no they can’t. You say they can’t understand this. Not communicate can’t do. You wrong.
even six year old can tell you choice. Even nonverbal can show you.
stop say mental age. It wrong. Person age is the age no head age. Six is six forty is forty eighty is eighty twenty is twenty. Lived twenty year is twenty year in everyway.
I my age not six. I have want and desire and can adult relationship.
treat like am age. Give way communicate. Listen with you eyes. Accommodate different need.
I not six. I 41 and need you explain different way. Understand different. Never child.
learn different learn slow and that ok. Don’t take my choice because you can’t understand how help me know.
six. Six is not my number.