autism

Extra Post

People make me mad lots.

I don’t be online for be argue.

I say my life.

Not first time I online but bully so much I go.

I not young. I don’t patient for people be rude.

My blog my space.

Is hard try again. You don’t know the abuse. You don’t know the death threaten. You don’t know what I go through.

I have lots help. I speak my life.

Everywhere feel not safe. Everywhere feel not acceptance be me.

Everything a fight in world everyone want dead.

I sick. I tired. Leave me say my life.

I still have therapist try make do ABA. It still make me feelings bad.

No ABA is good not any not new ABA all is hurting.

communication

AAC

I use lots AAC.

many I don’t control with. Shake and spasticity make hard.

trial device give control but go soon.

I need device. get fund make hard. Wait too hard.

give voice then take voice bad.

many don’t understand what say. Words hard understand.

always learn take long long time learn. People not wait give up me learn.

I’m not dumb just need long long time learn new.

be patient can know lots new things.

autism, communication, Disability, Social

Communication

I have a fish. My fish is happy.
he can’t talk, he can’t say what he wants, but he still can communicate.
he swims around fast and goes up and down his tank.
he looks at you and shows he wants food.
my fish is saying a lot.
I have a dog, my dog can’t talk.
he moves his tail and shakes his body. He goes closer if he likes being touched. He goes down when he’s scared. He makes noises to communicate. My dog can’t use words but he is communicating all the time.
I have cats, they can’t speak. They run and jump and play. They make sounds and move their bodies. They rub and push you when they happy. They bite and scratch when they upset.
my cats don’t use words, my cats are communicating.
I have a lot of pets, they don’t speak but they are saying many things.
I am a person. I don’t speak. I say many things with my body and my sounds. I don’t use words but I am saying many many things.
you can listen to the pets, they don’t speak. You can listen to me, I don’t speak. We are all saying many things, they don’t need words to be said.
communicating is more, communicating has many many ways.
see our languages and you might see a whole new world.

Written with Unity 144

autism, Disability, Social

we had a new support worker today and it was hard. don’t like new things and people never know what go wrong and something always go wrong. was very frustrated with the Vantage Lite it’s going wrong lots.
I heard the support worker say a word I didn’t like to hear and had only heard online for many years. I was bothered hearing something I had hear for abusing me most my life. I don’t understand why people say bad things to hurt us disabled.
it was long day and scary. Had to try explain I don’t know feeling hungry have no interoception. Can’t feel hungry thirsty go toilet not know pain or sick until very bad. I’m expected to know but it doesn’t fit in my head. Feelings are strange to me I didn’t know people had feelings until I adult. Now hard understand get asked you hungry you thirsty you need toilet and I don’t know. I never understand those.

Disability

i hear you

you think i don’t know

i hear

i see

you want dead me

you want me not born

you say can’t be if can communicate online

you say autistic don’t speak for you child cause not one of those

those use diaper, those hit themselves, those need help communicate

im one those, i don’t speak, i don’t understand lot without help

i see, i hear, you speak loud

you hate me, you want dead

i know

you don’t understand

i matter, i am loved, i am important, i deserve be here

i can be online with tools, tools you don’t want give, tools no one give then too old

i can learn, i am slow still learn, slow, sure, i can speak

my way, my rythm, i making sound

i speaking loud, you don’t want hear, you don’t want listen

you speak different language, this is mine

come hear me, i don’t want hear you anymore