Disability

You told me I was too loud

so I shut that inside

You told me I moved too much

so I trapped my body inside

You told me I was too much

.

You told me I couldn’t

because my body wouldn’t be safe

and I stayed so closed inside me

I no longer existed

.

I cut pieces of myself off and

swallowed them whole

hiding them inside

my inner castle

only to come play when I was alone

and I lost myself

.

I no longer recognise the faces in the mirror

I no longer recognise who I became

a stranger to myself

.

He told me I could

he told me to try

and I did

.

with you gone

I slowly attach the pieces of me

stitched carefully and slowly

back onto my soul

.

scarred bruised

painfully

but they’re me

I recover

and slowly

I start to recognise myself

.

loud

moving

taking up space

.

and it’s ok

because that is me

.

I should take up all the space

because the world needs to see

I am here

I exist

I am worthwhile

Social

I See You

I see you

I see you talk

I don’t know what sounds you is making

but I see

.

I see you body move

I see you face make shape

I see face make lines

I see you face mouth line

down or up

.

I know you talk about me or not

I see talk good or bad

people think I not know not understand

I know

I not have hear sound

I know I see

.

people talk about I front I

it make feel mad

I there I see I know

I can be talk to I can be include

I not doll I person

I have right be talk people too

I want friendship too talk to I not about I

.

Disability

Accessibility

Accessibility many many things

not just wheelchair ramp

Accessibility simplify language

little sound hush

earphones headphones

AAC device

facilitated communication

symbols

space to rock flap stim tic

book on sound

sign language

place latex free

assistive technology

light not bright

Accessibility many more things

Accessibility not just wheelchair

Disability more than just paralysis

Give more than just wheelchair ramp

All accessibility I need or world not accessible for me

autism, Social

Smile

often people say

smile

you look good when you smile

often people think

smile mean happy

smile isn’t happy

happy is my hands

my body

my moving

happy is flapping

stimming

big body wiggles

my face is not

my feelings

a smile means nothing

smile on face

is fake

forced

smile is what others taught

uncomfortable unnatural

awkwardly painful

my happiness

shows in my ways

i move

i bounce

i flap

i squeal

i don’t need to

smile for you

i only need to be me

stimming

free

see me in my world

doing my thing

and you may

see me differently

communication

meet people always go like this

carer say

this is Jay they use use that device to speak and carer point my device

then person talk to carer never me

but sometimes person say

oh how does that thing work

then want me show how use device

I hate this don’t do this

I person this my voice

don’t make me do performance

because you not understand

I not circus trick

I not say you

oh how you voice work

and wait you sing

when do that I not want use device

I not communicate long time

this hurt me

Communication device how talk

this my voice like you talk

be respect my communicate

not treat like circus

I talk my way when I want not for show

Device part me

like wheelchair part my body

I get hurt when people do bad to it