autism, communication, Disability, Social

if talk us understand this.
we multiple. We not say alter or personalities. We people.
I new person. I don’t know what happening. I don’t have memory everything. I can’t answer all question.
we use AAC. It not communication device need. It slow and frustrate.
we not read. We not understand most word. We likely not understand anything you say.
have complex disability. Can use hand little. Use hand hurt and not ability anything more all day. Be able use not mean good use.
can force into wheelchair. Make fall hurt. Make pain all day can’t move. Not safe.
When say can’t do alone true. Be do for one time day not mean can do.
everything scare and we not understand anything.

autism, communication, Disability

Don’t ask how I am

if ask me how I am you going get same answer. I bad. I going be bad long time. I am alone and scare. I no care long time. My love in hospital and not know when see again. I not able get out bed without hurt me. I not able feed me. I all day in bed. I scare not able get pet food. I not able see doctor. I not able call anyone. I not be okay long time. I not communicate people I don’t know. Get worse everyday. I need communication device not getting funded. I need support worker not getting sent. I need doctor. I need help not happening. I am bad. I am isolated. I can’t take care myself and no one understand. I scare going slowly die alone and never see my love again. no I can’t go hospital. No don’t call police. That make worse and very triggering. 

autism, communication, Disability

Forgotten

This not a happy write.
this is Butter. Butter my assistance dog in training.
Butter is why I alive right now.

I get forgotten.
people say what happen when I not here for my child. People say but you not like my child. People say what about the one wear diaper helmet not can take care themselves.
I this person.
I not meant be alone ever. I hit head bang on wall bite self hurt bad. I need helmet I use diaper I not talk voice words. I can’t ask food drink not be able tell hungry thirsty pain sick. I not able take care self.
what happen when nobody caring me?
I forgotten.
I left alone I hurt self I starve I dehydrate. If take hospital I left bed alone nobody give drink nobody feed. Meltdown in hospital be isolate. Nobody talk me.
I not can communicate away people know good. Not can say help not can say hurt not can say pain. Scream be leave alone.
send home no help. Send home not know anyone to care. Forgotten.
you want help like me? Listen. Understand all communicate not just word. include. Make community support all. Help understand help accommodate intellectual disability.
stop leaving. Stop ignore what happen. Stop forget

me.
I be left die. I be left no health care until die. Too late.
no carer mean no get up mean sore mean pain mean starve.
help before bad.
before message world say you not important. Before understand not matter all want dead.

Butter help be alive.

(Image of a golden dog looking around a door with a plush duck in his mouth)

a golden dog looking around a door with a plush duck in his mouth
Butter with Duck
autism, communication, Disability

I worth

I not support puzzle piece not for me
I not break even with disability
I not here teach lesson
I not make like this because bad
my struggle not yours

I person whole complete
my life have meaning
I deserve existence
I right be safe eat drink live communicate choice be include
I have right even not speak not read not write not work

you not see worthy
you not see give society
I worth you see or not
I not smart your way I smart my way

you see complicate I see simple
I see beautiful little thing
soft cat fur
smile dog face
light dance raindrop
colour sky sunset

you fast I slow
stop look
see feel listen
world beautiful make art all alone

I not break not piece
I not project
I not inspire
I not bad disability not bad

I not want you cure
I not want you pity
I me I me
I me scream I me rock I me pain meltdown stim routine
I me need help or not

my society community
help everyone
why separate

I not child
don’t tell good not scream
don’t tell good smile
I allow be mad
I allow say thing wrong

I exist
I deserve equal
I deserve access world

autism, communication, Disability, Social

Understanding

hello thank you comment my write yesterday
welcome new people
many nice support
something some misunderstand
I not think autism bad I neurodiversity positive
communicate my words hard understand AAC different language carer try translate not easy
many not understand I say
I be tell is smart I say no very hard write long time say help find word AAC not understand people
people say presumption of competence very big word I say listen I not do good people think understand think can do leave me isolate struggle make feel alone
presumption of competence good many not me
I struggle I not get help need not everyone same
I proud autistic I proud disability I proud different
I still struggle still need many help still need listen to
I say I can’t is truth you make will hurt me make worse
I know not smart I know different still not bad be me
people online see write words not see how do hard is help offline try understand try translate
language hard write is tired

written with Unity 144 location