Disability

Keep Going

I don’t know what to say. It is hard. My life has changed in big ways. I can’t do many things I used to. I try not to sleep. I don’t know I will wake up. I want to live.
I have dreams. I have goals. I am a person.
I don’t like be inside. I don’t like be in bed not moving pain. This not the life I want but it the life I have now and it still worth more.
I have stories to tell. I want world to know world to see.
I don’t want be another number lost and forgotten.
everyday I am calling from my heart see me hear me don’t let me die don’t let me die please please don’t let me die.
I want to see my loves. I hold hope. even if others can’t.
I am here. I won’t go without a fight. I will leave things on fire just like I have been all my life.

if you still here even if you can’t believe know this. I think you are extraordinary amazing. You matter you are worth the world. I hold hope in me for me for you for everyone. I will carry in me the beauty. You are loved. You are important. You are valuable.

keep going a second a minute a day. Keep going.

Jay

Written with Unity 144

Disability

Different Not Less

I been have difficult time. I worry about how hard everything for people trying help me. I know not easy everything happening with me and need big help. It been very hard and scary and I am very scare be leave alone again. I don’t want to die. I know alone again I will die.
I’m not only one like this. This happening to me happening to many everywhere.
I beg you this. Open eyes. See truth. Notice what been tried to hide. Value the disabled. Value those like me. Help. Don’t leave us isolated and alone. We have worth we matter. Together we are strong. unite. Stand with me. For me. For them. For all of us. Build a better future.
we are worthy of living. Let us live. Let us show you the beauty in our lives. We are beautiful. All of us. Open your heart to it and see the wonders of our worlds.
different not less

Written with Unity 144

autism, communication, Disability, Social

if talk us understand this.
we multiple. We not say alter or personalities. We people.
I new person. I don’t know what happening. I don’t have memory everything. I can’t answer all question.
we use AAC. It not communication device need. It slow and frustrate.
we not read. We not understand most word. We likely not understand anything you say.
have complex disability. Can use hand little. Use hand hurt and not ability anything more all day. Be able use not mean good use.
can force into wheelchair. Make fall hurt. Make pain all day can’t move. Not safe.
When say can’t do alone true. Be do for one time day not mean can do.
everything scare and we not understand anything.

autism, communication, Disability

Don’t ask how I am

if ask me how I am you going get same answer. I bad. I going be bad long time. I am alone and scare. I no care long time. My love in hospital and not know when see again. I not able get out bed without hurt me. I not able feed me. I all day in bed. I scare not able get pet food. I not able see doctor. I not able call anyone. I not be okay long time. I not communicate people I don’t know. Get worse everyday. I need communication device not getting funded. I need support worker not getting sent. I need doctor. I need help not happening. I am bad. I am isolated. I can’t take care myself and no one understand. I scare going slowly die alone and never see my love again. no I can’t go hospital. No don’t call police. That make worse and very triggering.