communication

meet people always go like this

carer say

this is Jay they use use that device to speak and carer point my device

then person talk to carer never me

but sometimes person say

oh how does that thing work

then want me show how use device

I hate this don’t do this

I person this my voice

don’t make me do performance

because you not understand

I not circus trick

I not say you

oh how you voice work

and wait you sing

when do that I not want use device

I not communicate long time

this hurt me

Communication device how talk

this my voice like you talk

be respect my communicate

not treat like circus

I talk my way when I want not for show

Device part me

like wheelchair part my body

I get hurt when people do bad to it

communication

People talk about selective mutism or intermittent speech with autism a lot but I not hear much about it with non-speaking AAC users.
I have trouble same but with AAC.
This my voice and sometimes I can’t use it with people I not very close with.
It make have good care very hard.
I can’t communicate and be misunderstand most time.
I have few people can talk device most time.
Sometimes things so bad not can talk device at all.
I not with doctor and workers and my day carer.
This mean I not get what need most time.
Mean I be frustrate a lot and meltdown a lot.
I want know I not only one this.
Communication device good and help a lot but still communicate only my safe people.

communication

we are art

15/11/20 6:27AM

we paint the world
with words
with colours
with movement

our words in many forms
text symbol picture sign
colour in art clothes craft home
movement in dance sport stims

our stims are our words
our colours
our dance

sometimes sad
sometimes happy
we are art

we are different
we are the same
we are beautiful wonderful creator
of our world

we are the dance
we are the paint
we are art

by Jay
Written with Unity 144