Category: communication

communication, Disability, Social

questions

JaysWorld

Content warning : talk of abuse

09/11/20 3:44PM

hello. I get question sometimes people ask. I be answer some when I can. I still learning words on communication device everyday learn new but take many repeat to know them.

sometimes I write these blog post and people think I talking about them. When I write something it because happen many time me and remember from many many time. I can be hurt once and nobody know because take long long time be say.

if you think I write about you what you doing so bad I write it? not have wrote about my partners on this because not like private be take.

so ask you why think I do about you? And if worry I say about you what you doing so bad to me?

some have ask name the cult I was in that taken me and name tribe was take from. I not going answer that it put me in dangerous if people stranger knowing. I have stay safe. Don’t do this asking me about that. It rude ask and same rude ask about what happen to person. Talk my trauma when I ready and I have picture word to say it.

I not have word many thing still. My language is little and slow and learn more and more when can.

autism, communication

Don’t tell me feeling

JaysWorld

don’t tell me what I feel. I had someone tell me I am happy. I not be happy very long time. I not like be tell what I not. You not know what in my head. I not face expression like person think.

other day I get hurt bad. When people hurt be cry or something show face people know is hurting. I was hurt be laugh and laugh. I not do same people not know I bad can’t show face expression.

sometimes be ask how you feeling. I hate hate this question. I don’t know what feeling most time. When feeling something is big strong feel. I not know happy sad what is? I don’t understand. It hard I not even know what thirsty hungry feel like.

I know what things make body doing this different what people say feeling is. I feel flappy win archery. I feel rocking when not like someone.

I not like be ask feeling. I hate be tell what I feel. I is me only I know me and what feel.

communication, Disability

Not say smart

JaysWorld

sometimes people see my communication device and how well I use it and get excited about it. I don’t like that.

it great be positive about my way communicating but it make me uncomfortable when so big reaction.

I get nervous and then talk little. And sometimes they look at what I’m writing on my screen. Don’t do that. I will stop talking. If you not my safe person I won’t use device if been watched.

my communication device is my voice. It is a part of me. Just like you don’t touch wheelchair you don’t touch device. There private things on my device. It’s made and edited just for me and how I like and understand best. No one have communication device same as my words. Be make how they like their one best. That how talk faster.

when people look my screen make me freeze. I can’t communicate anymore and then feeling trapped and make big meltdown.

also I don’t like be say so smart because using device and sometimes I fast. I don’t say you so smart because you can use mouth words. Don’t tell me anything of smart or dumb. It not good say. You don’t know how hard work take learn or how long. This fast for me because try many many then find right one me use. If this your only voice you learn and make fast too.

people value not in how intellect have. It not good this anyway. Not matter everyone valuable just be person alive. When say you smart take away how long and hard many working just be same. I’m not smart I work hard learning and many many meltdown frustrate when can’t understand what mean. A lot help need for stay alive. I not able anything no care help.

better tell about what did and how much work do not say so smart. Don’t do that make chest hurt.

good night

communication

My AAC

JaysWorld

hello. I be ask what AAC I using. I wanted write this on it own so more can know about how I talk. I use many AAC. I most use this Accent 1400 with Unity 144. It have different picture symbols because I need different. I use sometimes with keyguard and sometimes mouth stick and sometimes switches. My disability need change all time. Early maybe I not can move hand. Late maybe tired not move anything.

sometimes I use this LAMP words for life. Sometimes I use sign language get write down for me. Sometimes I show things. Communicate is a lot different ways. I like Unity 144 most because work good for me but other person maybe like different communication device and different symbol. My communication device dedicated device with funding. But use some on iPad too.

it take time to learn where word is and what many picture word mean. Some is easy and some take long time with many many repeat and explain different way until understand.

it help when care use AAC too then learn where word is but also make AAC look ok like people use voice. It my language. Everyone need different like everyone have different voice. Hope be understand. Communicate important should be give everyone how they can.

See you later.

*You can learn more about Jays preferred AAC at this website: https://www.prentrom.com/prc_advantage/language-systems

A red computer looking device with a grid of pictures on it and a keyguard over the picture grid.
Jays Communication Device
communication

Communication and Words

JaysWorld

Hello. a New video. Communication and Words. Thanks for watching! https://youtu.be/xRiewGWuw10

Transcript:

Hello. How are you?

I Talk about communication and words.

Many talk about communication.
People only listen when have words.
All life I not have words.
I given words then left alone.

Adults still need help learn devices.
Adults not just know talk using device once given.
There many words but want think.
How many word enough?

Can you count how many word say in one day? I can.
Can you ask for anything you want? I can’t.
Can you swear? I can.
How many different way can you say one swear word? I only a few.

Can you tell a story? I maybe.
What about a silly story with made up words? I can’t.
What about a story with sounds? I can’t.
Ask for things maybe good but that not communication.

Communication is more.
Communication is asking, refusing, swearing, saying a story, talking to pets, making sounds, describing things and more.

Communication is not just requesting.
When we not have access to words we not be include. We not include we not communicate. We not equal.

Give device good, sign, pictures, many way communicate. But please please not just give device and leave.
Show how use, talk with AAC, include. make AAC natural as your words. Then we be include.
Thank you. Take Care of yourself.

End Transcript